Quick Update

Just a quick update to say that Little Man's testing appointment went very well this afternoon. They took two biopsies, one from his bum, and one from the base of his skull. The first was a sample of 'normal' skin, and the second, a sample of affected skin. That's why they had to take it in such a weird place just under his hair, because all the rest of his wounds have healed too much to yield reliable results in the lab. And then they drew blood for a bunch of different tests.

So now we wait for the results! And in the meantime, we don't have to use the steroid cream nearly as much. He does still have to wear the special clothes, but we're getting some better ones that are made of silk, so they should be much more comfortable for him.

We should have a follow-up appointment next week, and hopefully get some definite answers. Thanks for all your prayers. We really feel supported and loved.